The worrying clauses of the Parlatino Neurorights Model Law
DOI:
https://doi.org/10.12795/IESTSCIENTIA.2023.i02.11Keywords:
Neurorights, Neurolaw, Neuroethics, Cognitive liberty, Neuroscience, Cognitive enhancementAbstract
Recently, the Latin American and Caribbean Parliament (Parlatino) promulgated a Model Law on Neurorights with the purpose of creating the bases for member countries to legislate on this matter. However, the documents presented by the Parlatino could suffer from serious defects in theoretical, conceptual and scientific foundation, as well as containing, and ignoring, important neuroethical debates. In this article we seek to highlight the main objections to the document presented to serve as a Model Law, as well as the Annex “General conceptual theoretical framework”. In this sense, we make a special call for academic, scientific and political debate, without incurring in hasty and inadequate normative proposals. For such considerations, we suggest not incorporating the proposed Model Law. On the contrary, we propose that, instead of creating ambiguous, abstract and general regulations, international agreements be legislated and reached on specific matters based on the real risks of neurotechnology, in such a way that the regulations truly protect. Until then, the critical comments that have been raised from academia are a necessary critique that disputes the role of neurorights in the global political environment.
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References
Biblioteca del Congreso Nacional de Chile. (2021). Decreto 100 fija el texto refundido, coordinado y sistematizado de la Constitución Política de la República de Chile. Disponible en: https://www.bcn.cl/leychile/navegar?idNorma=242302&idVersion=2021-10-25
BORBÓN RODRÍGUEZ, D. A., & BORBÓN RODRÍGUEZ, L. F., (2021) A Critical Perspective on NeuroRights: Comments Regarding Ethics and Law. Frontiers in Human Neuroscience. 15:703121. https://doi.org/10.3389/fnhum.2021.703121
BORBÓN RODRÍGUEZ, D. A., BORBÓN RODRÍGUEZ, L. F., & LAVERDE PINZÓN, J. (2020). Análisis crítico de los NeuroDerechos Humanos al libre albedrío y al acceso equitativo a tecnologías de mejora. IUS ET SCIENTIA, 6(2), 135–161. https://doi.org/10.12795/IETSCIENTIA.2020.i02.10
BORBÓN RODRÍGUEZ, D. A., BORBÓN RODRÍGUEZ, L. F., & León Bustamante, M. A. (2021). NeuroRight to equal access to mental augmentation: analysis from posthumanism, law and bioethics. Revista Iberoamericana de Bioética, (16), 6. https://doi.org/10.14422/rib.i16.y2021.006
BUBLITZ, J.C. (2022). Novel Neurorights: From Nonsense to Substance. Neuroethics (15), 7. https://doi.org/10.1007/s12152-022-09481-3
CÁCERES NIETO, E., y LÓPEZ OLVERA, C. (2022). El neuroderecho como un nuevo ámbito de protección de los derechos humanos. Cuestiones constitucionales, (46), 65-92. Epub 03 de marzo de 2022.https://doi.org/10.22201/iij.24484881e.2022.46.17048
Câmara dos Deputados de Brasil. (2022). Proyecto de Ley PL 522/2022 Modifica la Ley N° 13.709, de 14 de agosto de 2018 (Ley General de Protección de Datos Personales), a fin de conceptualizar los datos neuronales y regular su protección. Disponible en: https://www.camara.leg.br/propostas-legislativas/2317524
Comité Jurídico Interamericano. (2021). Declaración del Comité Jurídico Interamericano sobre Neurociencias, Neurotecnologías y Derechos Humanos: Nuevos Desafíos Jurídicos para las Américas. IAJC/DEC. 01 (XCIX-O/21). Organización de los Estados Americanos. Disponible en: http://www.oas.org/es/sla/cji/docs/CJI-DEC_01_XCIX-O-21.pdf
Comité Jurídico Interamericano. (2023). Declaración Interamericana de Principios sobre Neurociencias, Neurotecnologías y Derechos Humanos CJI/RES. 281 (CII-O/23) corr.1. Disponible en: https://www.oas.org/es/sla/cji/docs/CJI-RES_281_CII-O-23_corr1_ESP.pdf
Consejo de Derechos Humanos. (2022). Resolución A/HRC/RES/51/3 Neurotecnología y derechos humanos. Disponible en: https://documents-dds-ny.un.org/doc/UNDOC/GEN/G22/525/04/PDF/G2252504.pdf?OpenElement
CORNEJO-PLAZA, M. I., & Saracini, C. (2023). On pharmacological neuroenhancement as part of the new neurorights’ pioneering legislation in Chile: a perspective. Frontiers in psychology, 14, 1177720. https://doi.org/10.3389/fpsyg.2023.1177720
DE ASÍS, R. (2022). Sobre la propuesta de los neuroderechos. Derechos y libertades: Revista de Filosofía del Derecho y derechos humanos, (47), 51-70. https://doi.org/10.20318/dyl.2022.6873
DÍAZ SOTO, J. M., & BORBÓN, D. (2022). Neurorights vs. neuroprediction and lie detection: The imperative limits to criminal law. Frontiers in Psychology, 13, 1030439. https://doi.org/10.3389/fpsyg.2022.1030439
Diputados Argentina. (2022). Ley 24660 -. Modificaciones sobre la inclusión de técnicas de imagen cerebral y cualquier otro tipo de neurotecnología como prueba. Expediente 0339-D-2022. Disponible en: https://www.hcdn.gob.ar/proyectos/proyecto.jsp?exp=0339-D-2022
FINS, J. J. (2022). The Unintended Consequences of Chile’s Neurorights Constitutional Reform: Moving beyond Negative Rights to Capabilities. Neuroethics, 15(26), 1-3. https://doi.org/10.1007/s12152-022-09504-z
FYFE, S., LANPHIER, E., & PETERSON, A. (2022). Neurorights for Incarcerated Persons: Should We Curb Inflation? AJOB Neuroscience, 13(3), 165-168. https://doi-org.basesbiblioteca.uexternado.edu.co/10.1080/21507740.2022.2082585
Gobierno de España. (2021). Carta de Derechos Digitales. Disponible en: https://www.lamoncloa.gob.es/presidente/actividades/Documents/2021/140721-Carta_Derechos_Digitales_RedEs.pdf
Gobierno de Francia. (2021). LEY n° 2021-1017 de 2 de agosto de 2021 relativa a la bioética. Disponible en: https://www.legifrance.gouv.fr/jorf/article_jo/JORFARTI000043884401
HERRERA-FERRÁ, K., Muñoz, J. M., NICOLINI, H., SARUWATARI ZAVALA, G., & MARTÍNEZ BULLÉ GOYRI, V. M. (2022). Contextual and Cultural Perspectives on Neurorights: Reflections Toward an International Consensus. AJOB Neuroscience. https://doi.org/10.1080/21507740.2022.2048722
IENCA, M. (2021). On Neurorights. Front. Hum. Neurosci. 15:701258. doi: 10.3389/fnhum.2021.701258
IENCA, M., & ANDORNO, R. (2017). Towards new human rights in the age of neuroscience and neurotechnology. Life sciences, society and policy, 13(1), 5. https://doi.org/10.1186/s40504-017-0050-1
LEVY, N. (2008). Introducing Neuroethics. Neuroethics, 1, 1–8. https://doi.org/10.1007/s12152-008-9007-7
LIGTHART, S., IENCA, M., MEYNEN, G., MOLNAR-GABOR, F., ANDORNO, R., BUBLITZ, C.,... KELLMEYER, P. (2023). Minding Rights: Mapping Ethical and Legal Foundations of ‘Neurorights’. Cambridge Quarterly of Healthcare Ethics, 1-21. https://doi.org/10.1017/S0963180123000245
LÓPEZ-SILVA, P., & Madrid, R. (2021). Sobre la conveniencia de incluir los neuroderechos en la Constitución o en la ley. Revista Chilena De Derecho Y Tecnología, 10(1), 53–76. https://doi.org/10.5354/0719-2584.2021.56317
MEYNEN G. (2019). Forensic psychiatry and neurolaw: Description, developments, and debates. International journal of law and psychiatry, 65, 101345. https://doi.org/10.1016/j.ijlp.2018.04.005
MOREU CARBONELL, E. (2021). The Regulation of Neuro-Rights. European Review of Digital Administration & Law - Erdal, 2(2), 149-162. doi:9791259947529
MUÑOZ J. M. (2019). Chile - right to free will needs definition. Nature, 574(7780), 634. https://doi.org/10.1038/d41586-019-03295-9
MUÑOZ, J. M., & Borbón, D. (2023). Equal access to mental augmentation: Should it be a fundamental right? Brain Stimulation, 16(4), 1094-1096. https://doi.org/10.1016/j.brs.2023.05.003
NeuroRights Foundation. (s.f.). The Neurorights Foundation. Human Rights for the Age of Neurotechnology. Disponible en: https://neurorightsfoundation.org/
NeuroRights Initiative (2021). The Five Ethical NeuroRights. Disponible en: https://neurorights-initiative.site.drupaldisttest.cc.columbia.edu/sites/default/files/content/The%20Five%20Ethical%20NeuroRights%20updated%20pdf_0.pdf
PARLATINO. (2003). Lineamientos Metodológicos Para la Realización de Estudios de Armonización Legislativa. São Paulo, Brasil: PARLATINO.
PARLATINO. (2017). Procedimiento para la elaboración, discusión y aprobación de proyectos de leyes modelo. Parlatino.
PARLATINO. (2023). Ley Modelo de Neuroderechos para América Latina y El Caribe. Disponible en: https://parlatino.org/wp-content/uploads/2017/09/leym-neuroderechos-7-3-2023.pdf
PARLATINO. (s.f.) Historia y Objetivos. Disponible en: https://parlatino.org/historia-y-objetivos/
PETOFT A. (2015). Neurolaw: A brief introduction. Iranian journal of neurology, 14(1), 53–58.
PORFÍRIO DE SÁ LIMA, ÉFREN PAULO. (2017). Naturaleza jurídica del consentimiento informado a la luz de los modelos español y brasileño de protección al paciente. Revista de Derecho Privado, (32), 473-489. https://doi.org/10.18601/01234366.n32.16
POSTERARO, N. (2019). El problema del consentimiento informado de los derechos del enfermo a la despersonalización de la relación médico-paciente. Medicina Y Ética, 30(1), 67–92. Recuperado a partir de https://revistas.anahuac.mx/index.php/bioetica/article/view/438
Prensa Diputados Morena. (2023). Plantea María Eugenia Hernández Garantizar Entornos Seguros Ante Transformación Digital. Recuperado de: https://diputadosmorena.org.mx/blog/2023/08/12/plantea-maria-eugenia-hernandez-garantizar-entornos-seguros-ante-transformacion-digital/
RUIZ, SERGIO, RAMOS-VERGARA, PAULINA, CONCHA, RODRIGO, ALTERMATT, FERNANDO, VON-BERNHARDI, RoMMY, CUELLO, MAURICIO, GODOY, JAIME, VALERA, LUCA, ARAYA, PABLO, CONDE, EDGARDO, TORO, PABLO, & CANEO, CONSTANZA. (2021). Negative effects of the patients’ rights law and neuro-rights bill in Chile. Revista médica de Chile, 149(3), 439-446. https://dx.doi.org/10.4067/s0034-98872021000300439
SÁNCHEZ DE LAS MATAS MARTÍN, M. DEL C. (2016). Confusión Mereológica y Praxis Psiquiátrica: Aspectos de la Insuficiencia Teórica y Empírica. InterSedes, 17(35). http://dx.doi.org/10.15517/isucr.v17i35.25564
SENADO DE CHILE. (2021). Boletín N° 578/SEC/21. Ley de Neuroprotección. 2021. Disponible en: https://www.senado.cl/appsenado/index.php?mo=tramitacion&ac=getDocto&iddocto=14385&tipodoc=mensaje_mocion
TAYLOR, J. S., HARP, J. A., & ELLIOTT, T. (1991). Neuropsychologists and neurolawyers. Neuropsychology, 5(4), 293–305. doi:10.1037/0894-4105.5.4.293
UNESCO. (2021). Reporte sobre Cuestiones Éticas de la Neurotecnología. Disponible en: https://unesdoc.unesco.org/ark:/48223/pf0000383559
YUSTE, R., GOERING, S., ARCAS, B., et al. (2017). Four ethical priorities for neurotechnologies and AI. Nature, 551, 159-163. https://doi.org/10.1038/551159a
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